Friday, March 25, 2011

Liver Problems

This morning was flat out crappy and that is putting it way too politely. In the labs that were drawn this morning Abigail's bilirubin level and another they are watching closely had doubled from previous numbers. It is currently fifteen and a normal baby's should be less than one. As you can see in some of the pictures from the past few days, and even before, she is pretty yellow.

As days go by the signs are showing that the surgery did not take or that the liver is in really bad shape. Either way, the doctors have begun making calls in search of liver transplant options. We don't know if she would even be a candidate for a liver transplant with all of her other complications (Heart Surgery needed being the major one) and the Cat Eye Syndrome. A few cases have had transplants in the UK but those are the only ones our doctor knows about. We also don't know if she would need to have the heart surgery prior to getting a transplant. At this point we don't know much about the transplant situation other than it is likely she will need one.

Additionally, a transplant would require relocating for some amount of time, which is a scary thought considering Stephanie will be needing to go back to work in a little while. Whether east coast or west coast or in between we just have to wait and see.

In the meantime, we ask that you would pray that God would lay his healing hand on this sweet little girl. Also pray that He would comfort us and continue to give us strength while we wait. You more than likely have said a few prayers on our behalf if you are reading this and for that we are so grateful.

This morning she was wide awake!

17 comments:

wondergrrl said...

*hugs* and prayers for you guys.

Debbie said...

Steph and Jody,

We are praying even more fervently. I have a friend at school that is known to be a strong prayer warrior. I have shared with her and she has baby Abigail on top priority. Lindsey just called and told me she has her on their church prayer list as well as sending little Abigail's name and your blog through the prayer chain they have in the small group they belong to. Tim and I's church will definitely put her on our list as well. We just petition to the Lord to work all of this out for his little one. Remember, he loves her even more than you all do. That is so hard to imagine because we love her so much all ready and it does not compare. Our prayer is stay strong and lean on him. Love, Aunt Debbie

cristin steger said...

i love yall. i am praying.

Regina said...

My heart is just breaking for you all. You are doing such a great job being strong. Sending thoughts and prayers your way...

Michelle said...

I am praying for you guys!! Praying that you will feel as Beth Moore said "God's hands under you lifting you up and God's hands over you proctecting you." May He give you strength and comfort! I am also praying for sweet sweet beautiful Abigail...may He heal her!!

Nanette Johnson said...

I am praying for Abigail as you all wait.

Justin*Tara*LucasWhite said...

Praying for you guys. Sending so much love and prayers-

Unknown said...

I think about you at least a dozen times a day. I am whole-heartedly praying for sweet, precious Abigail and thinking about you, Steph and Jody. God has big plans for her. He will heal her.

Justin and Allison said...

We are praying and hope that you feel some sort of peace with all the people lifting you in prayer.

Paige said...

Praying often. You and your family on on my mind a lot. And P.S. whoever is taking all the pictures of Abigail is doing a fantastic job ;)

Summer said...

We are praying for all of you and will continue to do so! Abigail is one special girl!!

The Williams Family said...

So many prayers your way for you and your beautiful little girl!

Betsy said...

Oh, my. It hurts my heart just to read about the struggle that little Abigail is having. I wish that we were there to see her (if even just through the glass) and to pray with you for God to give her the strength to hang in there and for you to trust Him more now than ever. We love you.

Rachel Blaine said...

You don't know me, but I saw a link from Tanya Doescher asking for prayers for Abigail. I just wanted to say that you have prayers coming to your family from all over. My husband and I live in Boston, so if any medical trips ever take you East, please know that we have a spare room and would be happy to help however we could. - Rachel Blaine

Anonymous said...

Our thoughts and prayers remain with you, sweet Abigail, all of your family, and the doctors. May God continue to bless you with the strength and courage you need during this time.

Max and Susan Spencer

Melissa Adams Nicholson said...

I am praying for your sweet family. I know that your amazing strength will continue to hold you together. I will keep watch on your progress.

HILER said...

Prayers from Houston also! My thoughts are continually with you.