Monday, May 09, 2011

Mom's and Bath Time!

Abigail's direct bilirubin level dropped again this past week from 5.4 to 4.4. Awesome! Today we discussed the surgery with the surgeon and signed consent forms.  The surgery for the Fundo and G-button will be on Wednesday morning sometime. Also a new tube was placed down Abigail's nose to reduce the amount of spit-ups she is having.  The trans-piloric tube passes through her stomach to the intestine and the feed is put through the tube continuously.  As a result her bottle feeds were stopped.  She will be NPO (nothing per oral) tomorrow night sometime to prepare for surgery.  So hopefully two days away from the bottle shouldn't be a huge deal.

Happy Camper!
The weekend was tough for another reason though, it was Stephanie's first Mother's Day and it was overwhelming.  We are thankful for our mother's and all that they have done for us.  We got to share a nice dinner with our families but it was shared without an important little person at the table.  We were glad we could get together but it was a little bittersweet.  There are many people with tougher situations than we are in and we know that.  Stephanie has done an incredible job though and she deserves a great deal of credit.
Stephanie, Sherry and Brittany
Our Mother's - Jane and Sherry
A proud Mother is a pretty cool thing
On a lighter note, our daughter is a night owl and sleeps throughout the day.  The NICU is generally pretty loud and bustling during the day so maybe she just shuts down.  I don't know.  For whatever reason Abigail is just wide awake when its fairly quiet back there and it is so fun to watch her look around and interact.  She had a bath tonight, the first one since heart surgery, and did great.  Those moments help make up for the sucky ones.




Are you kidding me!
What Happy Girls!
All Cleaned Up!

6 comments:

Debbie said...

Yea for the bilirubin count being lower! That is just the best news. Stephanie you have been a great mom and one day little Abigail will say to you, "You are the best mom"! She is so pretty and lucky to have you two as parents. We are still praying for the surgery tomorrow. Aunt Debbie

HILER said...

She's so stinkin' cute! Contests on the lower bili level. Abigail is one lucky lady to have Steph as her mommy!

HILER said...

Congrats...I meant congrats...stupid auto correct! :)

Joanna said...

Yay, Happy Mother's Day Steph- an awesome mama indeed. Praising God for her bili levels and lifting her and y'all up tomorrow!

Kelly said...

Too precious! Happy 1st Mother's Day to you!!!

Melodi said...

I'm so glad to hear her bili level is going down! And she is just so stinking beautiful!!! Mothers day is a date on a calendar! It's the special moments that you are there for her that count. It's all about making those memories that will stay in your heart forever. You're amazing, Steph!